Blog Post

Harri's Story


Holibobs • Jan 09, 2019

Harri was just 4 years old when he was diagnosed with a soft tissue sarcoma in November 2014. It was whilst getting him changed into his pyjamas, watching Children In Need that we felt a small lump on Harri’s forearm. At the time we never imagined that it would be anything serious and left the first appointment in disbelief and complete shock. Within days Harri was having the full range of scans and following a biopsy a couple of weeks later our worst possible fears were confirmed. Within no time at all we found ourselves thrust into a very frightening world of treatment plans, cycles of medicine and having to find ways of living with awful side effects and protecting Harri as much as possible from the increased risk of infection.

Nothing at all could have prepared us! Over the last four years Harri has endured various forms of treatment and hospital procedures that have been so terribly hard on him and totally heart breaking for us. He has missed out on so much that is everyday and normal but his courage, resilience and cheeky personality shines through always. He has the most amazing imagination and can quite literally make a game out of anything. He is strong willed and determined and has many, many loves from his big sister and best friends to trains, football, David Attenborough and Harry Potter. He is quite simply our superhero!

When Harri was asked what holidays meant to him he said that they made him feel free and we can’t think of a better description. Freedom from hospital, freedom from medicine and the sickness it brings, freedom from horrible procedures allowing him the time to be the child he should be and being given the opportunity to spend time away having fun and being normal means the world to him.


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